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Your public involvement newsletter shares news and information for people who are interested in and planning public involvement in health and social care research.
Anyone can subscribe, just share this link.
By public involvement in research, we mean research that is done ‘with’ or ‘by’ the public, not only 'to', 'for' or 'about' them. This includes patients, carers, advocates, service users, and other members of the community.
If you’re reading this, you’ll know that public involvement is important, expected and possible in all types of health and social care research. There are many ways that people with relevant experience can contribute to designing, carrying out and sharing research. And there is a wealth of information about how to do this well, so research is more inclusive, relevant and impactful.
We hope this newsletter:
- makes that information easier to find
- shares useful learning and reflections
Make sure you’re also subscribed to HRA Latest for:
- invitations to get involved in the HRA’s work
- HRA news and developments
In this month's newsletter
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We’re changing how we work with our community of volunteers and public contributors to make sure that you have a good experience.
Following a review of the HRA’s Community Committee, which was established in 2023 to make sure that your experience is considered when the HRA makes decisions, the HRA Board has agreed to move to a new model. Instead of a standing committee, a wider range of people will be invited to take part in targeted activities to support individual pieces of work, with feedback regularly collected and acted on.
We shared this news, and our thanks for their work so far, with the Community Committee last week. You can read more about the Community Committee and our ongoing commitment to involve diverse perspectives in our work in this blog from Director of Policy and Partnerships, Becky Purvis.
The National Coordinating Centre for Public Engagement (NCCPE) Engage Summit 2026 (29 to 30 April, Birmingham) will bring together people working in universities, communities, policy and public engagement to reflect on how we can build a more inclusive and engaged research system.
The event draws on a year of conversations and consultations about the future of higher education and provides space to explore what’s working well, where challenges remain, and how we can strengthen trust and collaboration across sectors.
The Summit offers a valuable opportunity to learn from innovative engagement practice, understand how current policies are shaping the sector and connect with others who are committed to embedding meaningful public involvement in research.
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This e-book, compiled from excerpts of the NIHR Patient and Public Involvement in Action Webinar Series, offers a unique look into successful patient and public involvement within health and social care research. It showcases practical examples and valuable insights, clearly illustrating how the UK Standards for Public Involvement come to life in practice.
From dementia care and childhood obesity prevention to HGV driver health and refugee mental health, this collection provides a rich tapestry of real-world examples of successful patient and public involvement.
Whether you are a researcher, a public contributor, or a policymaker, this e-book offers an experience-based roadmap to high-quality, inclusive involvement.
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An NIHR Applied Research Collaboration (ARC), ARC West have been working to develop a co-production community of practice.
A group of team members from different organisations and sectors realised they had very different vocabularies when talking about co-producing research. As the project progressed, differences in their understanding became evident through shared experience and conversation. They also continually examined and evaluated their assumptions and beliefs.
Surprisingly, two of the most challenging terms they used were ‘research’ and ‘researcher’. In practice, such seemingly simple words were problematic.
In this blog, they explore these differences and discuss how they overcame these language barriers.
The introduction of the UK Standards for Public Involvement in 2018 have provided a clear, values-based framework for meaningful public involvement in health and social care research. Now, they are being translated into other languages which means more people can share their experiences and help shape research that affects their lives.
Be Part of Research makes it easy to find and take part in health and care studies happening in your area and online. Whether you have a health condition or not, you can help shape the treatments, care and services of the future.
It's free, quick and open to everyone.
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